I cannot begin to tell you how much this family amazes me. They get hit hard and come up kicking. With a smile on their faces.

On June 20th, 2008, Scott went to Sutter Memorial Hospital in Sacramento for a short 45 minute surgery to remove an oil cyst from his chest. After a 3 hour surgery, they were informed that the cyst was actually cancer.
Scott has synovial cell sarcoma. The synovial cells are the cells that grow in the cartilage between the bones. It is a malignant type spindle cell tumor that is very rare. There are less than 100 cases per year in the US and Canada, and synovial cell sarcoma accounts for less than 3% of all childhood cancers. Of all the past cases, only 4 have had tumors in the chest, and none in the sternum.
The size of the tumor was larger than 5cm, which means he was considered an intermediate risk. The type of cancer (high grade) and it’s size combine to place him at stage 3.
Scott handled daily radiation extremely well and only needed 6 cycles of chemo due to some changes in scheduling. He went back to school in January 2009. In February 2009, Scott had a whole team of plastic surgeons along with Dr. Gates rebuild his sternum using a combination of methyl methycrylate and marlex. It was an impressive procedure, a miracle of modern medicine.
After being cancer free and living with NED (no evidence of disease) for almost 2 years, their lives changed again. On December 14, 2010, Scotty woke up with strong pains in his chest and pretty bad nausea. He had been having some mild, irregular pain for a few weeks but this was different. He went to school and finished his finals that week but we were on the phone asking to have his regularly scheduled follow up scans moved sooner. He went for a CT and Bone Scan on Dec 20th and they heard from the doctors on the 21st of December that there appears to be new disease in his chest.
As of June 2011, Scott has had six rounds of chemo since he relapsed -- the same combination that he had two years ago. There has been some response to treatment, but not a total response. He is approaching the lifetime limits for one of the drugs, so they also have to watch how it affects his heart. We are looking for a surgical or intra-operative radiation procedure to increase his response. The fact that he has already had his sternum removed and replaced is only complicating matters.
Today, July 13th Scott will have a “right thoracotomy with resection of persistent lung nodules” in Houston, Texas. Dr Hayes-Jordan is a sarcoma surgery specialist, and the Harringtons feel very confident in having her as Scott’s surgeon. There is still some question as to whether or not we will continue chemotherapy after surgery. We don’t have a definitive answer from MD A but we know that Dr Yim in Sacramento would like to do two more rounds after surgery.
Scotty is in surgery as we speak. I have been up and thinking and praying for the family since 6:30 this morning when he went into surgery. As a Mom, I cannot fathom this overwhelming situation. But this family has been such a testament of faith.
So please, if you are a praying folk, say one for our friend Scotty. And the surgeon, Dr. Hayes-Jordan. For their family . . . Bill and Christi, two of the most amazing people I know . . . Christian, the little brother who is home with his grandparents during this time.
** Quick Update . . . Scotty is out of surgery safely (!!) and in recovery. Bill and Christi should be able to see him soon. The surgeon was able to remove several lesions and left Scotty's ribs intact. Praying now for a smooth recovery and pain management!